Sarcoidosis

Sarcoidosis is a multi-system disease of unknown cause in which nests of cells appear in many tissues, including the lung, lymph nodes and liver.  The disease is recognized in many parts of the world, but is more prevalent in western societies.  The overall prevalence appears to be in the order of 20 in 100,000.

Symptoms

Liver biopsy reveals distinct lesions which develop due to an inflammatory reaction, which are referred to as hepatic granulomas.  These lesions are present in about 75 per cent of patients.

Pulmonary lymph node involvement is typical.  Fibrosis or scarring of the lungs may be widespread and lung function may be abnormal.

In addition to liver and lung involvement, there may be other symptoms associated with the disease such as the enlargement of lymph nodes, facial nerve paralysis, arthritis, cystic bone lesions, excess calcium deposited in the kidneys, heart disease and neurological problems which may include peripheral nerve damage and diabetes.

Treatment

There is no specific treatment for sarcoidosis.  However, symptoms are treated as needed.

Support

National Help Line:
This support resource gives you and your loved one somewhere to turn for answers after diagnosis, helps you understand your disease, and provides you with the resources you need.  You can call 1 (800) 563-5483 Monday to Friday from 9 AM to 5 PM EST.

The Peer Support Network:
This is a national network of people living with liver disease that have offered to share their experiences with others. It was developed by the Canadian Liver Foundation as a means to link Canadians like you who have a family member who has liver disease, who care for someone who suffers from liver disease, or who have been diagnosed with a liver disease, to talk about your concerns with a peer in a similar situation.

If you would like to be connected with a peer supporter in your area, or would like to join the peer support network, please call the National Help Line at 1 (800) 563-5483 Monday to Friday from 9 AM to 5 PM EST or email us.