It's been quite a while since I last shared my journey with Primary Biliary Cirrhosis. A lot has happened since then! Since my last entry my bilirubin levels continued to increase to the point I was placed on the 'wait list' in early February.
February was a very trying month, I thought I was suffering from a lung infection as I couldn't take a deep breath and my appetite disappeared. After a visit to my GP it turned out I was having an episode of ascites and the fluid in my abdomen was pressing up on my lungs thus not allowing me to breath properly. I had gained about 15 lbs in two weeks! (If I had been monitoring my weight daily, like I was told to, I would have realized the weight gain was unnatural and my appetite was so low.) Also, my legs and ankles were swelling with accumulated fluid. After that was diagnosed and a few visits to the specialists, the ascites was treated and after a couple of weeks the extra fluid had drained. I must say it was nice to see the weight scale drop by about 2 lbs a day especially for a person who has struggled with her weight all her life!
Then the unbelievable happened.... I received 'the call' in the early hours of March 11 advising they might have a match for me. I arrived at the hospital and later that day was told the doner organ was good and the transplant would go ahead. It has been 4 weeks today since I had the transplant and it's amazing the progress I've made. The surgeons all said the transplant was a perfect match and the operation took one and a half hours less than the usual. Doctors and nurses alike kept exclaiming that I was recovering so well, they couldn't believe it. I'm not sure if they were just trying to make be feel good or not or if I was progressing faster than most liver transplant patients. I've progressed to the point I can now walk for 15 min on the treadmill at 2.5 m/h. I'm increasing the time and speed daily and feeling good. The medication is being monitored weekly and adjusted accordingly. Hopefully in a couple of months some of the drugs will be eliminated and others will be reduced.
All in all, the last few months has been a whirlwind and my wait time on 'the list' was minimal. I will be forever grateful to the doner and his/her family for giving me this second chance at life and being able to spend more time with my children and young grandchildren.
Until my next update........... Liz